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December 2003 Issue


    Articles include:

    PROGRAM DESCRIPTION

    SPIN is co-sponsored by the Disability & Communication Access Board and the Special Education Section of the Department of Education. Services include a phone line for information referral and support, a quarterly newsletter, an annual conference and community workshops. SPIN is guided by an Advisory Committee made up of parents, teachers and people with disabilities.

    SPIN
    919 Ala Moana Blvd., # 101
    Honolulu, Hawaii 96814

    PHONE
    586-8126
    Neighbor Islands dial the following exchange then 6-8126: Kauai -274-3141; Hawai'i-974-4000; Maui-984-2400; Molokai & Lanai - 1-800-468-4644

    FAX
    586-8129

    E-MAIL
    accesshi@aloha.net

    WEB
    www.spinhawaii.org

    TWO GREAT CONFERENCES

    2004 Learning Disabilities, ADHD and Teen Conferernce - Waikiki Beach Marriott

    This popular annual conference has these goals:
    © build awareness about dyslexia and other learning disabilities
    © present current information and research about reading and ADHD, and
    © inspire, motivate and stimulate further discussion.
    Dr. Larry Silver, child psychiatrist and noted author, and Dr. G. Reid Lyon, research psychologist and national advisor, are featured speakers. More information about the conference is available from the Learning Disabilities Association of Hawaii at 536-9684, 1-800-533-9684 or on their website: www.ldahawaii.org.

    Pac Rim 2004: Promises to Keep, Futures to Seek - Sheraton Waikiki

    Last year's Pac Rim Conference drew close to a thousand participants, and this year's program is a winner, too! Pac Rim's keynotes and workshops are organized around five themes or strands:
    ™ inclusion in education and the community,
    ™ technology across the lifespan,
    ™ parent partnerships and family support,
    ™ life after high school, and
    ™ body, mind and spirit.

    Registration fees are $160 for the two days, if you register by December 31st. There are also a limited number of parent and consumer scholarships available, but you'll need to act fast by calling Martha Guinan at 956-9810 or go to: www.pacrim.hawaii.edu.

    MEDIATION AND FACILITATION: TALKING THROUGH THE DIFFERENCES

    The growing trend across the country in resolving conflict is the use of mediation and other processes that encourage cooperation. In a recent study by the General Accounting Office (GAO), many states reported using mediation and other strategies to resolve differences between schools and parents of children with special needs. Hawaii's Department of Education is keeping pace with this national trend by offering mediation and faciliation options that can be used at any time at no cost to the school or parents. Both options offer schools and parents the opportunity to work through their differences while focusing on the needs of the student.

    What are mediation and facilitation?

    Mediation is a voluntary process in which a neutral person (a mediator) helps participants negotiate and resolve their differences by meeting with the participants in both joint and private confidential sessions

    Facilitation is a structured way to conduct an IEP meeting that helps participants talk through their disagreements to come up with a program that benefits the student.

    (Mediation is less costly, less stressful and faster than a due process hearing)

    How does the process work?

    Mediation and facilitation require the assistance of a neutral third party-a mediator or a facilitator. In Hawaii, once a school and parents agree to use one of these processes, the mediators and facilitators are randomly assigned to each case by the community mediation center (see the box on page 3 for the list of centers). While both facilitators and mediators avoid making any decisions or telling the participants what to do, their roles are slightly different.

    In mediation, the parties themselves decide on the outcomes and all decision making is voluntary. If an agreement is reached the mediator helps put the terms of the agreement in writing. To insure compliance, all agreements are faxed to the special education office for monitoring.
    Mediators help parties:
    ß get clear about what is important to them
    ß understand each other's issues better
    ß explore all options
    ß come to agreements they can live with, and
    ß create a helpful way of working together in the future.

    Facilitation can occur even earlier than mediation. In a facilitated IEP, the facilitator talks to key participants (parents and school) in advance to hear their concerns and identify desired outcomes of the IEP meeting. Other duties include:
    ¸ creating an agenda that clearly defines the topics/issues to address at the meeting,
    ¸ ensuring that the agenda items are addressed within the agreed upon time frame, and
    ¸ helping the group listen to each other and reach agreements for the benefits of the student.

    When can mediation be used?

    Although the Individuals with Disabilities Education Act (IDEA) requires states to offer mediation when a request for due process hearing is made, mediation can be offered at any time in Hawaii. In fact, parents and schools are encouraged to use mediation as soon as there is a disagreement that can't be resolved through informal discussion and negotiation. The sooner differences are addressed in mediation, the more likely the matter can be quickly resolved and positive working relationships between school and parents restored and strengthened.
    In Hawaii, parents and schools often wait until disagreements escalate and then move directly to the hearing process, rather than attempt mediation in the early stages of the disagreement. In those instances, when mediation is ultimately offered as required under IDEA, it is often declined because trust is lacking, lines have been drawn and positions are hardened.
    For example, between July 1, 2001 and June 30, 2002 a total of forty requrests for mediation of special education issues were made through the community mediation centers, but only nineteen cases were actually mediated. In the other twenty-one cases, either the school or the parents declined mediation and instead opted to resolve the matter through a hearing or other means.
    While accessing mediation early is ideal, it can work even after a request for due process has been filed. The process generally becomes more formal and structured with more private sessions once there is a hearing pending. However, it is generally still worth the time to work through the process and attempt to reach a resolution. Even if an agreement isn't reached, the parties can clarify the issues that will later be decided by a Hearings Officer.

    Why ask for mediation or facilitation?

    Conflict is a fact of life and special education is fertile ground for conflict. Educators and parents bring different perspectives and beliefs to the table when they meet to discuss goals, objectives and educational plans for a child. Mediation and facilitation provide new approaches to these challenges.
    Mark Twain once said, "If you do what you've always done, you'll get what you've always got."
    So, the next time team members disagree and can't seem to move beyond the disagreement or reach a murally acceptable solution, consider requesting a mediator or facilitator. With their help, you and other team members will be able to express your views, be heard, understood and ultimately agree on challenging issues that impact the life of the child.

    --by Tracey Wiltgen, Mediation Center of the Pacific

    Where to Find Mediation and Facilitation?

    On Oahu:
    Mediation Center of the Pacific, 521-6767

    On the Big Island:
    East: Ku'ikahi Mediation Program, 935-7844
    West: West Hawaii
    Mediation Center, 885-5525

    On Kauai:
    KEO Mediation Program, 245-4077

    On Maui, Molokai & Lanai:
    Mediation Services of Maui, 244-5744

    ARTS EDUCATION SCHOLARSHIP OPPORTUNITIES

    VSA arts of Hawaii-Pacific, in partnership with the Department of Health Developmental Disabilities Division and the Honolulu Academy of Arts (HAA) will award 10 arts education scholarships for classes offered at the HAA beginning January 21, 2004.
    Applicants must be in both the Department of Education and the DOH Developmental Disabilities systems. They will also be selected in the order in which they contact Patrick Norton at VSA arts of Hawaii-Pacific, at 808-946-7300/V/TYY before Dec. 20, 2003. Each student will be assigned a VSA arts ACCESS PASS Code to sign up for a 12-week class.
    VSA arts will assign an arts mentor to each student to act as an arts education aide. Personal Assistants are expected to remain on the premises to assist with personal needs.
    Similar VSA arts education scholarship opportunities are being arranged on Maui, Lanai, Kauai, Big Island and Molokai and will be announced in the SPIN '04 February issue.

    FOLLOW-UP STUDY OF CHIDREN WITH HEARING LOSS IN HAWAII

    More than 3 of every 1,000 babies born have a hearing loss. New technology (Newborn Hearing Screening) permits the identification of possible hearing loss within days of birth.
    All hospitals in Hawai`i screen newborns' hearing. The Department of Health keeps track to make sure all babies' hearing is screened, and that babies with a possible hearing loss are referred for an audiological evaluation.
    But no one knows what happens to children born with hearing loss as they get older and go through school. How many get early intervention services before they are 3 years old? How many go to private schools? How many are in Special Education, and for how long? How many regularly wear hearing aids? How well can children with hearing loss communicate with families and friends? Does it make a difference how old the child was when his or her parents leanred their child had a hearing loss?
    The Department of Health is trying to answer questions like these through Project EASI (Early Screening, Assessment and Intervention). Project EASI is supported by a grant from the Centers for Disease Control and Prevention (CDC).
    When we learn more about the answers to these questions, we will publish the results in this newsletter. Right now, we want to talk with parents of children born between 1992 and 1998 with a hearing loss. If parents (and older children) want to be in the study, we will collect information from records at schools, audiologists, etc. where the child received services. We may provide evaluations if we can't find the information we need in records. The more children we can include, the more accurate our results will be.
    If you have a child born between 1992 and 1998 with a hearing loss, or if you know someone else who does, you can call Beppie Shapiro, Project EASI Director, at 973-9644 to find out more about Project EASI or volunteer to join.

    SPIN AWARDS

    Every year, SPIN singles out some key parents and professionals whose efforts make a positive difference in the lives of children and young adults with disabilities and their families in Hawaii. These outstanding individuals will be honored at our '04 SPIN Conference, "Take a SPIN Through Hollywood" on April 24, 2004.
    We are asking for your help in identifying candidates for SPIN's major awards:
    *Parent of the Year
    *Professional of the Year
    *Family Choice Award
    To request a nomination form, please call SPIN at 586-8126 or e-mail accesshi@aloha.net. We would like to hear about your "heros and heroines" by March 3, 2004.

    "WE CARE" SUPPORT GROUP

    The "We Care" Support Group is a general group for any military family who has a spouse or child enrolled in the Exceptional Family Member Program (EFMP). Each month the focus is on a particular illness, disability, or guest speakers, videos, and discussions. It's a good time for families to let the EFMP Coordinator know what problems they may be having with the hospital, housing, TRICARE, DOE schools or other concerns.
    The group meets the 3rd Wednesday of each month at 6:00 p.m. and on the 3rd Tuesday of each month (same time) at the Fort Shafter ACS Bldg. 330.
    For more information call Janet Bamford at 655-2303.

    PO`OHALA:
    "To Carry on Family Virtues & Skills"

    On October 24, 2003 at the Third Annual Can-Do Conference, the Po`ohala Family Support Council presented grant awards to two projects who will demonstrate unique and innovative approaches to providing family support services in Hawaii. Priority for these awards was given to family groups whose project addressed the aging of caregivers, respite/social recreation or consumer directed control and self-directed funding.
    Big Island family members William Farr and Ellen Aoki received a check for $2,562.00 for Po`ohala Kupunas. Their project will try to identify caregivers who are 50 and above and help connect them to community resources and supports. The project will also develop a respite program for the caregivers as well as a mentorship program for younger caregivers.
    Honey Burns and Pam Haydon received an award of $14,880.00 to carry out their project "Na `Ohana Ne'i Imua - "Families Moving Forward". It will expand support for families by training more people in the Individualized Service Plan (ISP) process for individuals with developmental disabilities to include the practice of self-determination and person-centered planning. If you are interested in participating in these training efforts, please contact Honey at (808) 965-7699 or Pam at (808) 328-2246.
    The project will also produce a video sharing the lives of two families in Hawaii who have used self-determination principles in the development of the ISP.

    ******************

    Many individuals with disabilities are pursuing self-employment as a career option. Self-employment offers more flexibility and celebration of unique strengths than traditional employment. Another advantage is that profits can be used to grow the business and provide long-term benefits to its owners.
    One private non-profit organization that is helping individuals realize the dream of owning their own business is the Sea of Dreams Foundation.

    EMPLOYMENT DREAMS PERFECTED (EDP)

    On October 1, 2003 six participants opened the door to abilities with their own retail business Second Time Around Toys +(STAT +) Limited Liability Company (LLC) (page 7) at the Makaha Marketplace. This unique business offers the community an opportunity to purchase refurbished and repackaged toys below market prices.
    The six individuals are working hard to build their inventory with the support of Street Bikers United who pick up additional used toys during their annual Toys for Tots drive on December 7. One of the most amazing things in this endeavor is that the partners pushed to incorporate the 'plus' sign because they did not want to limit themselves to only toys. Their dreams have grown to include computerized products, crafts and other wholesale items. In addition, they are working on consignment plans that would allow them to share in the profits of local crafters.
    The Kahuku counterpart, Sea Sun Things+ (page 7), is eagerly producing handmade 'natural' products for their shop in Hauula. The talented youth spend hours discovering the 'aina looking for things that can be transformed into precious saleable products. Glass has been fashioned into earrings, broken kukui nut shells into chokers, and key chains are beautified by small shells.
    Remarkable things can happen when folks reach for the stars! One participant is gainfully employed since accessing the support from the EDP program while several other participants are enrolled at local community colleges.
    For more information about the Sea of Dreams Foundation, Inc., please call 695-5877.

    SPECIAL EDUCATION ADVISORY COUNCIL (SEAC)

    The Individuals with Disabilities Education Act (IDEA) requires that each state establish and maintain an advisory panel for the purpose of advising the State special education staff regarding the education of all eligible children with disabilities. In Hawaii that advisory panel is the Special Education Advisory Council.
    The mission of SEAC is to guide and assist the Department of Education in fulfilling its responsibility to meet the individual needs of children with disabilities. IDEA requires the Council to perform these functions:

    * Comment publicly on DOE's proposed rules and regulations

    *Advise the DOE in developing corrective action plans

    *Advise the DOE in developing evaluations and reporting on data to the U.S. DOE

    *Monitor the implementation of activities and timetablesrelating to consent decrees or court orders

    *Advise DOE in developing and implementing policies relating to the coordination of services for students with disabilities

    *Advise the DOE of unmet needs in the education of students with disabilities

    *Advise on the education of eligible students with disabilities who have been convicted as adults and incarcerated in adult prisons.

    SEAC is made up of a diverse group of individuals with expertise on all aspects affecting special education and related issues. The majority of members are parents of children with disabilities or consumers, and each school district is represented.
    SEAC invites the public to participate. We want to hear your success stories and the issues that concern you. Feel free to write, call or visit. Our meetings are held at the Library of the Hawaii Center for the Deaf and the Blind (3440 Leahi Avenue in Honolulu) and are open to the public. You may receive minutes of our meetings by contacting us, or you may view them electronically on the SPIN website: www.spinhawaii.org/sap/

    Have you faced a closed door? Fair Housing: It's not an option! It's the law!

    Fair Housing is one of the most basic civil rights that people have. Federal and state laws protect people from being discriminated against on the basis of race, national origin, religion, sex, family status, disability, age, marital status, HIV infection and the use of service animals
    If you, or someone you know, may have been discriminated against in any housing related trans-action, call the Legal Aid Society of Hawai'i Fair Housing Enforcement Program. They can take initial complaints, give advice, provide information and help to file a complaint. There are no income requirements and the services are free of charge.
    For moreinformation, call the Fair Housing Enforcement Program at 527-8024, or from the Neighbor Islands, 1-866-527-FAIR.

    PROJECT TACT
    (Teaching All ChildrenTogether)

    The Center on Disability Studies (CDS) at the University of Hawaii has just received an $800,000 grant to train educators to teach children with disabilities together with typical children-- in general education classrooms
    using the general education curriculum. One of the reasons that the Office of Special Education Programs (OSEP) funded this grant is that Hawai'i educates children with disabilities in regular classrooms a smaller percentage of their school day than most other states.
    The four year grant will provide training and stipends to 75 educators. Courses begin in the Spring of 2003. For more information, call Jean Johnson, Project Director, at 956-2653, or e-mail her at jeanj@hawaii.edu.

    HANG ON TO THESE DATES

    12/11 Deaf Santa Day
    Pearlridge Shopping Center
    9:30-1:00 p.m. Contact Doreen at 733-4999

    AWARE Workshops
    12/10 Section 504 (Hilo) - Call Phyllis at 968-7544
    12/13 Development of the IEP (Kahuku) - Sarah at 293-4262 or LDAH at 536-9684 x26
    1/7 & IDEA/Chapter 56 (Keaau)
    1/14 Call Phyllis at 968-7544

    2/13 & '04 Pacific Basin Learning Disability & ADHD Teen Conference
    14 Waikiki Beach Marriott Resort, Call HIDA at 538-7007 or LDAH at 536-9684

    EFMP & AWARE IEP Workshop Series
    3/2-4 Schofield
    3/9-11 Fort Shafter ACS, Bldg. 330 Call 655-2303

    3/29 PAC Rim Conference on Disabilities 2004
    & 30 Sheraton Waikiki, www.pacrim.hawaii.edu/ 956-9810 or cds@hawaii.edu

    4/24 '04 SPIN Conference "Take a SPIN Through Hollywood"
    UH Campus Center, Contact SPIN