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February 2005 Issue


    Articles include:

    PROGRAM DESCRIPTION

    SPIN is co-sponsored by the Disability & Communication Access Board and the Special Education Section of the Department of Education. Services include a phone line for information referral and support, a quarterly newsletter, an annual conference and community workshops. SPIN is guided by an Advisory Committee made up of parents, teachers and people with disabilities.

    SPIN
    919 Ala Moana Blvd., # 101
    Honolulu, Hawaii 96814

    PHONE
    586-8126
    Neighbor Islands dial the following exchange then 6-8126: Kauai -274-3141; Hawai'i-974-4000; Maui-984-2400; Molokai & Lanai - 1-800-468-4644

    FAX
    586-8129

    E-MAIL
    accesshi@aloha.net

    WEB
    www.spinhawaii.org

    RETENTION DOESN'T WORK

    Many parents whose children are making poor grades in school have considered the possibility of retention (holding their child back in the same grade for another year). Their thinking is, "if my child didn't learn all the required subjects this year, then repeating this grade gives him or her a second chance to "catch up."
    When making a decision about whether to hold your child back, it is important to know that more than 40 years of research has not found retention to be helpful. In many cases it has actually had a harmful effect on the student.
    The National Association of School Pyschologists (NASP) has put out a position statement discouraging the use of holding students back. Here is the evidence they cited:
    In elementary school, holding a student back may not hurt in the short run, but there is no evidence that if helps with long-term achieve-ment or social adjustment. Any achievement gains from the year of retention tend to decline within 2-3 years, so that the student is performing no better than comparable students who were promoted.
    Rentention causes low self esteem and is associated with significant increases in problem behavior. It can also lead to poor attendence.
    Research also shows that by high school, students who were retained a year or more are 2 to 11
    times more likely to drop out of school than other students their age. Retained students are less likely to receive a diploma, less likely to go on to college, and more likely to hold lower paying jobs after leaving high school.
    The NASP position statement does point out that the research is based on groups of children, so there may be individual students who benefit from being held back. Overall, however, retention fails to help most students and costs school districts millions of dollars for the additional years of instruction.
    Instead of retention, a focus should be on adjusting a student's IEP to provide better supports.

    THE 5 BIG IDEAS OF READING INSTRUCTION

    Reading is a skill that most of us take for granted. Most of us learned to read without a lot of difficulty. But for up to 20 million children nationwide reading is a struggle. That includes 70-80% of students with specific learning disabilities. Without special help, they will never master this all important skill.
    Teachers and parents have long been aware of the terrible cost to the struggling reader in terms of poor grades and low self esteem. We are just beginning to understand the larger costs to society of not helping children learn to read well.
    Our children who are poor readers are not just at a disadvantage in the classroom. Their inability to read well affects socializing and independent living, too.
    Just think how hard it would be to do the following activities, if you couldn't read as well as your peers:
    **order from a menu at a restaurant
    **text message your friends
    **play Monopoly
    **use the Internet
    **prepare a recipe from a cookbook
    **fill out an application for an after school job.

    Thankfully our educational system is finding solutions to the problem of reaching students who have fallen through the cracks and are not reading at grade level. In 1997, Congress urged the formation of the National Reading Panel to identify issues and strategies around reading.

    1. Phonemic awareness
    2. Phonics
    3. Fluency
    4. Vocabulary
    5. Reading Comprehension

    The Panel looked at research on children's reading development from preschool to 12th Grade. They found that the numbers of girls vs. boys who were struggling readers were about equal, but that boys were more often identified as poor or at risk readers. Reading disabled girls may escape the teacher's attention as they are less likely to misbehave in class.
    The research identifed critical skills, early steps and environments that are important for gaining beginning reading skills. The evidence stressed the important role that parents and others play in exposing children to reading at an early age. It also stressed how critical it is to identify children at risk for reading failure early and provide support to them quickly.
    To help children of all ages achieve success in reading, the Panel identified five big ideas of reading instruction:

    Phonemic awareness
    Phonemes are the smallest parts of spoken language. English consists of about 41 phonemes or sounds. When they are put together they form words. For instance, the word dog has three phonemes: /d/ /o/ /g/. Phonemic awareness is the ability to hear, identify and manipulate the sounds in language.

    Phonics
    Phonics instruction helps with word recognition and spelling. It teaches children the relationship between letters and sounds (phonemes). For instance, the letters 'm', 'a' and 'n' make the sounds /m/ /a/ /n/. Blended together, they make the word man.

    Fluency
    Reading fluency is the ability to read with speed and accuracy. When reading out loud, it includes the ability to read with the proper expression and phrasing. Fluency helps readers make the connections between the ideas in what they are reading and their own knowledge (reading comprehension).

    (74% of the children who are poor readers in 3rd grade remain poor readers in the 9th grade.
    --The International Dyslexia Assoc.)

    **10-15% of struggling readers drop out of school.**Only 2% earn a 4-yr. college degree**Poor readers makeup 1/2 of the children and teens who abuse drugs & alcohol **More than half of teens and young adults with criminal records are poor readers

    Vocabulary
    Vocabulary means the words we must know to communicate effectively through listening, speaking, reading and writing. Children use the words in their vocabulary to make sense of what they read.

    Reading comprehension
    Instruction in comprehension helps children understand what they read, remember what they read and communicate with others about what they read. Comprehension is the reason for reading.

    In a nutshelll...
    Children use phonemic awareness and phonics skills to unlock new words and read them. They then must be able to apply the skills quickly, to understand the words they read, and to relate what they read to their own experiences.
    In order to help the struggling reader, teachers must be trained in these research based methods. Instruction must be targeted to a child's specific need and be systematic.

    HERE'S THE GOOD NEWS...

    Identifying struggling readers early and providing them with systematic and intensive instruction in phonemic awareness, phonics, fluency, vocabulary and reading comprehension helps most chldren overcome their reading difficulties.

    WHAT PARENTS CAN DO TO HELP THEIR CHILD LEARN THROUGH READING

    Learn more about reading instruction.

    Come to the SPIN Conference (pg. 7)!
    Watch for our May 2005 article on reading
    and older students.
    Check out these websites:
    www.ldonline.org
    www.nichd.nih.gov/reading.htm
    www.nationalreadingpanel.org

    Ask your child's teacher about your child's specific reading strengths and needs.

    Find out what kind of instruction is being used to help your child and how you can reinforce reading skills at home.

    Foster a love for reading in your home. Find time each day (if only 10 minutes) to read to your child and/or have your child read to you.

    COMMUNITY CHILDREN'S COUNCILS

    Throughout the State of Hawaii, 16 Community Children's Councils (CCCs) represent and provide local community participation to families of children and adolescents with educational and / or behavioral health needs.
    Working together with the State Departments and service providers, CCCs collaborate to improve system development and service delivery. CCCs are a forum for community-based planning and quality management. The CCCs assist schools with increasing parent and family participation, information sharing, training, and support to children and families with special needs.
    We are always looking for interested parents who want to improve the lives of children and adolescents in their communities. If you are looking for support, training, or the company of other parents of children with special needs, please give our office a call. We can put you in contact with your local CCC. On O'ahu, call 586-5363. From the Neighbor Islands, please call us toll-free at 1-800-437-8641. You can also reach us at randy_komatsu@notes.k12.hi.us. We look forward to hearing from you soon.

    Submitted by
    Randy Komatsu
    Community Children's Council Office

    MUSCULAR DYSTROPHY NEWS

    MUSCULAR DYSTROPHY SUPPORT GROUPS

    The Muscular Dystrophy Assocation of Hawaii support groups offer adults and children with neuromuscular disorders and their families opportunities to meet and talk with others facing similar challenges. Participation in support group meetings are open to children, parents, friends and family members.
    Meeting schedules for support groups are as follows:
    Oahu
    --ALS Support Group, 2nd Tuesday of every month, 6:00 p.m. - 8:00 p.m., Castle Medical Center
    --General Support Group, 2nd Friday of every month, 5:00 p.m. - 7:00 p.m., Shriner's Hospital
    Hilo
    -- 2/26 & 8/27, 10:00 a.m. - 12:00 p.m., Hilo Medical Center
    Kauai
    --6/4 & 12/3, 10:00 a.m. - 12:00 p.m.,Lihue Neighborhood Center
    Maui
    --4/30 & 10/29, 10:00 a.m. - 12:00 p.m., Maui Memorial Medical Center
    For more information, call 548-0588 or e-mail: hawaiiservices@mdausa.org.

    MDA HAWAII SUMMER CAMP

    The Muscular Dystrophy Association Summer camp is a week of fun and learning for children and adults from Oahu, Maui, Kauai and the Big Island living with neuromuscular disease. The camp runs from June 22-29,2005 at the YMCA Camp Erdman on Oahu. Activities are specially designed for those with limited mobility or use wheelchairs. Everyone attends camp each year free of charge.
    For more information about the MDA Summer Camp or to volunteer to help at the camp, contact Jennifer Li at 548-0588 or e-mail to hawaiiservices@mdausa.org.

    MAC-PLUS RECREATION PROGRAMS

    The United Cerebral Palsy Association is offering the following special recreation program for youth 15 years and up with a disability:
    **Friday Night "Grinds" - $2.00 for 5-week program
    2/25, 3/18, 4/1& 22, 5/6 -(5:00 p.m., different restaurants in Honolulu)
    **X-Ventures/Sports - $2.00 for 5-week program
    2/12, 4/16 UH Baseball
    3/5 UH Basketball
    3/26, 4/30 X-Venture sport
    **Special Event - Hawaiian Waters Adventure Park
    5/14 12:00 noon - 4:00 p.m.- $2.00 (group meets first at UCP)
    Sign up for all activities is on a first come, first served basis with limited enrollment. Registration must be done in person at the Honolulu UCP office at 414 Kuwili Street, #105. For more information, call 532-6748.

    ASSISTIVE TECHNOLOGY RESOURCE CENTER

    The Assitive Technology Resource Center (ATRC) is offering the following employment classes for youth transitioning from school to work and adult life.
    Career Explorations (CE) is an on-going class that will help to map an individual's career goals, identify resources to achieving these goals, and provide continuous support for them while in the program. It is open to individuals 18 or older with a documented disability, a resident of Hawaii and who is interested in exploring/developing a career plan. Up to $500 worth of training.
    Job Track (J-Track) will provide specific support for individuals seeking employment who needs to learn how to use computers, submit a resume and use the Internet for job searches. This free class meets every
    Wednesday from 9:00 a.m. - 12:00 p.m. and is open to individuals 18 or older.
    For more information about these , contact Kevin Forde-Nihipali, Director of Training at 532-7115.

    TRAINING SERIES FOR FAMILIES WITH CHILDREN WITH AUTISM SPECTRUM DISORDERS

    The Department of Education is offering a series of trainings for Central District families of children with autism spectrum disorders or related developmental disorders. The sessions will provide overview information on specific topics for planning at the school level and in the home. Limited childcare slots are available with prior notice and will be provided in a separate classroom on campus.

    February 10, 2005 - Stress Management
    March 10, 2005 - Understanding Behavior and Reinforcement
    April 14, 2005 - Social Skills

    All sessions will be held at the Pearl Harbor Kai Elementary School Library from 6:00 p.m. - 8:00 p.m. To register or for more information, contact an autism consultation teacher:
    Louise Funasaki at 483-7373; Judy Halvorson at 622-6427; or Aletha Gomez at 483-7371.

    HAWAII FAMILIES AS ALLIES CONFERENCE

    Hawaii Families As Allies is holding its annual conference on May 14, 2005 from 8a.m. -3:30 p.m. at the Honolulu Airport Hotel. There will be guest speakers, door prizes and lunch!
    Call the HFAA office for additional information at 487-8785. A limited number of stipends will be available for neighbor island families. The conference is free of charge.

    A DAY AT THE CAPITOL

    The Developmental Disabilities Council (DDC) is inviting individuals with developmental disabilities and family members to attend "A Day At the Capitol" on March 9, 2005 at the State Capitol Auditorium, Chamber Level from 9:00 a.m. - 3:00 p.m. This is an opportunity to discuss disability-related issues with legislators, network with other concerned citizens, participate in legislative activities and tour the Capitol.
    Please RSVP to the DDC office by Friday, February 25, 2005. For more information call the following: Oahu - 586-8100; Big Island - Howard Marks at 936-4061; Kauai - Dennis Liphart at
    274-3484; Maui,Molokai, Lanai - Mary Matsukawa at 984-8218.
    Get involved and let your legislators hear about developmental disability issues that affect you and your family.

    PARTNERS IN POLICYMAKING TWELVETH LEADERSHIP ACADEMY STARTS IN AUGUST 2005

    If you are a person with a developmental disability or a family member of an individual with a developmental disability you are eligible to apply for this Academy. Partners is an innovative program for self-advocates and family members. The program is designed to provide information, training and resources, which will develop and increase skills and productive partnerships between people who need and use services and those in positions to make policy and law. This program will support individuals to lead self-determined lives.
    Over 180 individuals have graduated from the Partners program since the State Council on Developmental Disabilities started this program in 1994. Partner's graduates are serving on many boards, commissions and councils throughout the State. Partner's graduates have also participated in Legislative Advocacy and created community awareness through the various media.
    Applications are being accepted for the TWELVETH Academy, which will meet in 2005 -August 19-20, September 9-10, October 7-8, November 4-5, and December 2-3 - at Tokai University. Application deadline is May 27, 2005.
    For more information and applications, contact Susan Kawano on Oahu at 586-8100. Neighbor Island may call on the State toll free line: Big Island 974-4000; Kauai 274-3141; Maui 984-2400
    After dialing one of the numbers above, at the prompt of the message, enter 68100 and the # sign. For Molokai and Lanai call 1-800-468-4644.

    Submitted by: Mary Matsukawa, Project Coordinator

    Congratulations to the Eleventh Partners Academy
    who graduated January 29, 2005.

    CALENDAR OF EVENTS

    2/28 - 21st Annual Pac Rim Conference
    3/1/05 Sheraton Waikiki
    www.pacrim.hawaii.edu

    3/15-16 Asperger's Syndrome, Non-Verbal Learning Disorder & High-Functioning Autism: Effective Interactive Strategies for Children, Adolescents and Adults (Oahu)
    Health Ed - 1-800-839-4584, or www.health-ed.com

    3/5 Hawaii Branch of the International Dyslexia Association (HIDA) Conference
    Contact 538-7007, or HIDA@dyslexia-hawaii.org

    4/23 '05 SPIN Conference - "SPIN's Recipe For Success"
    UH Campus Center, Call SPIN

    7/29 Learning Disabilities Conference (UH Hilo)
    Call LDAH at 536-9684 or 1(800) 533-9684 (neighbor islands)

    Hawaii Families As Allies Workshops
    For more info, contact HFAA at 487-8785
    Big Island - Call Carmen at 933-0640
    2/23 Stress Busters
    3/9 & 23 Opposition, Conduct & Multi-Systemic Therapy
    4/13 & 27 Impact o f Emotions, Crisis & Respite Services
    5/11 & 25 Passive, Attention & Group Therapy
    6/8 & 22 Challenging Behavior & Coordinated Service Planning
    Kauai - Call Brendelyn at 274-3883, ext. 229
    2/17, 4/12 Last One Picked/First One Picked On
    & 5/19
    3/8, 4/21, How Difficult Can This Be? (F.A.T. City video)
    & 6/14
    3/17, 5/10, When the Chips Are Down
    & 6/16
    Maui - Call Pualani at 873-3386
    2/24 When the Chips are Down
    2/25 How Difficult Can This Be? (F.A.T. City video)
    3/4 & 10 Last One Picked/First One Picked On
    3/11, 4/28 Supplemental Security Income
    4/1 Severe Emotional Disorder
    4/8 IMPACT (How a Child's Behavior Impacts the Family)
    5/14 HFAA Youth Conference
    6/10 Communication
    7/8 Behavior