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September 2002 Issue


    Articles include:

    PROGRAM DESCRIPTION

    SPIN is co-sponsored by the Disability & Communication Access Board and the Special Education Section of the Department of Education. Services include a phone line for information referral and support, a quarterly newsletter, an annual conference and community workshops. SPIN is guided by an Advisory Committee made up of parents, teachers and people with disabilities.

    SPIN
    919 Ala Moana Blvd., # 101
    Honolulu, Hawaii 96814

    PHONE
    586-8126
    Neighbor Islands dial the following exchange then 6-8126: Kauai -274-3141; Hawai'i-974-4000; Maui-984-2400; Molokai & Lanai - 1-800-468-4644

    FAX
    586-8129

    E-MAIL
    accesshi@aloha.net

    WEB
    www.spinhawaii.org

    EBS: HITTING THE TARGET

    Over the course of the Felix Consent Decree we have seen some significant improvements in the delivery of behavioral health services to children and teens. The first step was improving our ability to identify children with mental health needs. Then to meet the needs of this growing population, we had to expand and improve the array of services we could offer to them and their families. Once many of those services were in place, the focus shifted to making sure that these services really helped-that kids and teens improved because of the therapy or service provided.
    This latest step-making the system of care accountable-is using a growing body of scientific evidence about what kinds of interventions are most likely to work for kids with a specific diagnosis. Evidence-based services or interventions (EBS) are those that have been scientifically proven to have a positive effect in the treatment of a particular disorder, like attention deficit hyperactivity disorder (ADHD) or depression.
    When looking at the evidence, researchers study both the efficacy of the therapy or drug, as well as its fectiveness. Efficacy refers to how well the intervention works in strictly controlled studies. Effectiveness refers to how well it works in the "real world." Effectiveness takes into account a number of factors, like how the child and family view the intervention, how often it is used and how much it costs.
    Stimulant medications (like Ritalin), for example, have been shown to have high efficacy in treating the symptoms of ADHD. But if parents don't want to use the medication, or if it is given in an improper amount, then it won't be effective.
    Hawaii is becoming a leader in making evidence-based services a priority in children's mental health. In our next issue, we'll share information on what is working for kids.

    NO CHILD LEFT BEHIND

    By mid-September, most of our readers will have gotten letters from their child's school explaining the School Choice and Supplemental Services pieces of the No Child Left Behind Act (the latest version of the Elementary and Secondary Education Act). This article is intended to review what your school will be sharing , and to highlight how these provisions apply to students with disabilities. No Child Left Behind (NCLB) is not specific to special education. It is intended to improve the quality of education for all students, and especially those students who have been struggling in low-performing schools.

    NCLB Public School Choice
    If your child is in one of the 85 public schools identified as "needing improvement" or "corrective action"
    you may be able to transfer your child to another public school that is performing well. The law requires the Department of Education to offer the option of tranferring to any parent whose child attends one of the targeted 85 schools. However, there are not expected to be many available spaces at most performing schools (due to the fact that many parents obtained geographic exceptions last Spring for this school year).

    Parents who wish to transfer their child to another school can obtain a list of spaces available at performing schools from their school principal after September 11th. You must submit a NCLB Interest Form to your child's school between September 11- 30. After September 30th performing schools will count up the requests to transfer to their school. Should the demand for space exceed the supply, priority students (see definitions) will be accepted first. If any openings remain after these students have been accommodated, schools will hold a "Chance Selection Date" on October 4th.

    You will be notified by the principal of the school of your choice no later than October 15th whether your child will be accepted. Before a student with an IEP or 504 plan transfers to another school, there must be an informal review by the home school to be certain that the requested school has the appropriate program and services to meet plan requirements. And while some transportation will be provided through NCLB, students who have transportation as a related service in their IEP will no longer receive curb to curb service.

    DEFINITIONS:

    *Priority Students are students who receive free or reduced price lunch and score the lowest grades on their report cards in math and reading/English.

    *Elementary & Secondary Education Act (ESEA) is the principal law affecting K-12 Education. The No Child Left Behind Act is the latest reauthorization of this law that dates back to 1965.

    *Adequate Yearly Progress (AYP)
    is the minimum level of progress toward academic standards set by the State that schools must achieve each year.

    *Schools Needing Improvement are schools that have not met AYP for two consecutive years.

    *Schools Needing Corrective Action are those that have been identified as needing improvement for three consecutive years.

    TIME TABLE FOR SCHOOL CHOICE

    Sept. 11-30 Parents turn in NCLB Choice
    applications to their home school

    Oct. 4 "Chance Selection Date" for schools who receive more requests than it has spaces

    Oct. 15 Principal of receiving school notifies the parent regarding the student's acceptance

    Oct. 28 1st Day for NCLB Choice
    Students at the new school

    SCHOOL CHOICE & SUPPLEMENTAL SERVICES

    NCLB Supplemental Services
    Supplemental services are intended to provide extra academic help to low income students who remain at a school needing improvement or corrective action. Supplemental services occur outside of the regular school day and may include tutoring, after school programs, remedial classes or summer school. The focus is on reading, language arts and/or mathematics. Priority will be given to students who have the lowest grades in mathematics or language arts and who receive free or reduced-price lunch.

    If your child receives NCLB supplemental services, your home school will work with you and the provider that is selected to develop a plan for improvement that supports the goals of your child's MP/IEP. However, these services are not considered part of your child's MP or IEP.

    Remember: These options for NCLB School Choice and Supplemental Services are tied to schools that are underperforming. If your school improves to the point where it is making Adequate Yearly Progress, these options may not be available.

    This issue of the SPIN News is focusing on the school choice and supplemental services pieces of the No Child Left Behind Act of 2001. This important law also covers other requirements aimed at improving America's schools, including:
    ® Requiring annual report cards to show how well schools are performing
    ® Strengthening teacher quality
    ® Providing annual statewide assessments for students in grades 3-8
    ®Promoting teaching methods that have proven to work, especially in the areas of reading and teaching English to immigrant students
    ®Giving schools more flexibility in how federal funds are used.

    Bus transportation will be provided as long as space is available. If the new school is outside of the current bus service area, parents may receive mileage reimbursement.

    THINGS FOR PARENTS TO CONSIDER*

    1) Will moving to a new school improve my child's achievement in reading and math?
    2) How will the move affect my child's social and emotional well-being? (for example, leaving friends, entering a new and unfamiliar school)
    3) How long or far will my child have to travel to attend a new school?
    4) How will a move affect my child's after-school activities?
    5) How does my child feel about moving to a new school?
    6) Have you visited the new school with your child to see what they have to help him/her achieve better in reading and math?
    7) Would my child do better receiving supplemental education services (such as tutoring) from his current school to improve his reading and/or math?
    8) Does the school we are considering have a similar school calendar, so my child won't lose instructional time or access to school activities?
    9) If my child is receiving counseling at school or from a mental health provider, will a possible change in personnel affect his/her progress?
    10) Will arrangements for my child's before- and after-school care be affected?

    *Developed by the Hawaii Parental Information Resource Center (HPIRC),the Hawaii State PTSA and SPIN

    ACRONYMS

    Hungry for 'ALPHABET' Soup? Try a hearty serving of ACRONYMS

    An acronym is a shortcut for a string of words that go together. It is usually formed by taking the first letters of the words and capitalizing them. SPIN (Special Parent Information Network) is an acronym too. Here are some common acronyms that you may wish to add to your menu.

    Department of Education

    AT Assistive Technology
    BOE Board of Education
    CAS Complex Area Superintendent
    CBI Community Based Instruction
    DES District Education Specialist
    DTT Discrete Trial Training
    EA Educational Assistant
    EPSDT Early & Periodic Screening Diagnosis and Treatment
    ESY Extended School Year
    FAPE Free Appropriate Public Education
    FBA Functional Behavior Assessment
    FERPA Family Education Rights & Privacy Act of 1974
    GED General Educational
    IDEA Individuals with Disabilities Education Act
    IEP Individualized Education Program
    ISPED Integrated Special Education System (SpEd Database)
    MP Modification Plan
    PBS Positive Behavior Supports
    PLEP Present Levels of Educational Performance
    RISE Retraining in Special Education
    RT Resource Teacher
    SEAC Special Education Advisory Council
    SEVR Special Education Vocational Rehabilitation Program
    SSC Student Services Coordinator
    SST Student Support Team
    TDD/TTY Telecommunication Device for the Deaf/Text Teletype

    Department of Health

    CAMHD Child & Adolescent Mental Health Division
    CASSP Child & Adolescent Service System Program
    CCC Community Children's Council
    CIL Center for Independent Living
    CSHNB Children with Special Health Needs Branch
    CSP Coordinated Service Plan
    DCAB Disability & Communication Access Board
    DDD Developmental Disabilities Division
    DSM/IV Diagnostic Statistical Manual (Fourth Edition)
    FGC Family Guidance Center
    IFSP Individualized Family Support Plan
    ISP Individualized Service Plan
    MTP/MP Master Treatment Plan
    PICL Partnerships in Community Living
    QUEST Quality Care, Universal Access, Efficient Utilization, Stabilize Cost, Transformation (DHS Medical Insurance)
    SCHIP State Children's Health Insurance Program
    SSI Supplemental Security Income
    WIC Women, Infants & Children (Nutritional Program)

    PO'OHALA INFORMATION PROGRAM

    The Po'ohala Council, a project of the Developmental Disabilities Council, has created a new information program that will provide basic information on services available to support adults with developmental disabilities. Trained volunteers will be able to assist families and individuals to identify service needs, so they can make better decisions with core information about financial support, employment training, medical and dental care, housing, transportation, legal services, technology and recreation, as well as their rights and responsibilities.
    The speakers, using a unique visual aid, are available to go to groups of families and other interested persons and give their one-hour presentations as part of the regular meeting. A small amount of money (stipend) is available for family members, consumers, and volunteer advocates.
    To arrange for a speaker for your group, call the Developmental Disabilities Council Office at 808-586-8100 or e-mail: poohalaproject@netscape.net. The Developmental Disabilities Council and the Po'ohala Council offices are located at 919 Ala Moana Blvd., Suite 113, Honolulu, 96814.

    TALK STORY FESTIVAL 2002

    The Department of Parks and Recreation will be presenting Hawaii's largest storytelling
    celebration on October 18, 19, and 20, 2002 at McCoy Pavilion located at Ala Moana Park. from 7:00 p.m. - 9:30 p.m. The Talk Story is family-friendly, accessible and free.
    This year's festival features Makia Malo, of Kalaupapa, who is blind and Ed Chevy, a performer who is deaf. For more information about this unique presentation, contact Jeff Gere at 692-5751 or e-mail: jgere@co.honolulu.hi.us.

    CAMA AAC WORKSHOP

    The Communication Aid Manufacturers Association (CAMA) is sponsoring an assistive technology and augmentative/alternative communication (AAC) workshop on October 7, 2002 at the Waikiki Beach Marriott Resort (formerly the Hawaiian Regent Hotel). The workshop is designed to help participants learn about the latest in assistive technology innovations.
    Pre-registration is $35 for families of direct consumers and full-time students and $65 for professionals. On-site registration is $90 for professionals.
    Complete information and on-line registration is available at www.aacproducts.org, or contact Chris Murin, Workshop Coordinator, at 1-800-441-2262.

    FAMILY LEADERSHIP ACADEMIES
    Easter Seals of Hawaii and Hawaii Families As Allies are conducting 2-day leadership academies for parents of children and adolescents with special needs. Topics to be covered include an overview of Felix, IDEA, 504, developing negotiation and communication skills, the impact of emotional/behavioral disorders and coping strategies, and more.
    9/28-29 Easter Seals Hawaii 10/26-27 Hilo DOE Annex 12/7-8 Easter Seals Hawaii
    For more information contact Nicole at 536-1015 or Yvonne at 487-0514, and in Hilo call Carmen at 933-0640.

    THE OCEAN OF POTENTIALITY SUMMER CAMP

    The Ocean of Potentiality, Science & Technology Camp once again provided a successful camping experience for 35 youth this
    past summer. Thanks to the many volunteers and supporters, including Navy and Marine personnel, campers with disabilities were able to actively participate in in-depth and hands-on activities. Campers explored the concepts and tools of measuring and observing weather, learned about family values and the Hawaiian culture, tested their ideas about wind with kites, bubbles and wind vanes, and much more.
    Mentoring and taking responsibility were also an important aspect of the camp. Junior counselors (past campers who have been promoted) formed a special support component for both campers and counselors. They learned that everyone is called to give back some of what they have received.
    More camps are being planned for next year. Volunteers are needed! If you are interested in participating as a camper or a volunteer, please contact the Sea of Dreams Foundation at (808) 695-5877.

    4th Annual BUDDY WALK

    The Buddy Walk celebrates October "National Down Syndrome Awareness Month" and is sponsored by the National Down Syndrome Society, Hawaii Down Syndrome Congress, schools and organizations. The walk will be held on October 20, 2003 and begin at the Kakaako Waterfront Park. Registration is from 9:00 a.m. - 10:30 a.m. and the walk starts at 11:00 a.m.
    Brickwood Galuteria will be emceeing this fun-filled day. Bring a dish to share and your own drinks and enjoy display booths from local agencies, character appearances, Bocce Ball and other fun games for the kids. If you can help, please call Cheryl at 672-6444.
    The day's festivities will also include the presentation of awards to individuals/organizations who have done outstanding work in helping children with disabilities. Deadline for nominations is October 1st. If your child has a talent they would like to share at the Buddy Walk, contact Connie at 949-1999 or e-mail: hawaiidownsyndrome.com.

    Catholic Charities Family Services

    Na 'Ohana Pulama Program
    Families of Light and Nourishment

    There are many children in Hawaii who for one reason or another, cannot live with their parents. They may be having problems at school, at home and/or in the community. These youth need someone to help them back on the right track. They need support and guidance in a home setting.
    If you have room in your home and your heart you can become an "Ohana Pulama, a "family of light and nourishment".
    For more information on foster parenting call 535-0101.

    CAMHD WEB

    View the most current information about Child and Adolescent Mental Health Division (CAMHD) training. The website contains the training schedule for '02-'03, registration form, and guidelines for training:
    www.state.hi.us/doh/felix/dev.html

    MARK YOUR CALENDAR

    Exceptional Family Member Program Workshops- For locations and times call 655-2303.
    9/4 Disability Awareness
    9/16 Making Choices
    9/18 How to be Your Best Advocate
    9/19 Securing Support
    9/23 Understanding Vocational Rehab Services
    9/26 Section 504
    9/30 Americans with Disabilities Act
    9/30 IDEA & Chapter 56 - call LDAH at 536-9684
    ***
    AWARE Workshops - For locations and times call 536-9684
    9/10, 10/2, Development of the IEP
    10/8, 10/09
    9/17 Development of the IEP-Part 2
    9/24 Chapter 56
    10/1, 10/3, Understanding Evaluations
    10/10
    10/7 IDEA/Chapter 56
    10/19 IDEA (Kauai)
    ***
    9/21 Annual Foster Parent Care Conference
    Sheraton Waikiki
    Call 263-0920, toll-free 877-775-4400

    9/21 Sibshop Movie Night
    Easter Seals Hawaii
    Contact Nicole at 526-1015

    9/23 Pediatric Brain Injury Family Support Meeting
    Contact Helen at 277-0101

    9/27 Island Skill Gathering Open House (assistive technology demo, displays & more)
    Call Wally at 732-4622

    10/4 Leadership Symposium & Annual Early Childhood Conference
    10/5 Contact Kathy at 942-4708 or haeyc@aloha.net

    10/12 Beyond the Blues Festival- 'A Celebration of Life'
    Mental Health Association at 521-1846.
    10/26 "Fostering Motivation, Hope & Resilience in Children with Learning Difficulties"
    Call 538-7007 or info@hibida.org

    4/12 2003 SPIN Conference (UH Campus Center)